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You awake at 3:00 AM, drenched in sweat, paralyzed and unable to remember
the name of -- or call out to -- your spouse of 20 years.
Four days later, in the Neurological Intensive Care Unit, your attending
physician explains that you've had a "cerebral vascular accident,"
a stroke. Talk will soon turn to post discharge planning, skilled nursing
facilities, adult day care, speech therapy, and the "spend
down" of your life savings. Your children, scattered across
the country, and with families of their own, are torn between the need
to protect the continuity of their own lives, and their roles as potential
caregivers. Ironically, despite your sudden loss of independence and the
daily challenges of any protracted medical condition, it is your spouse
who will suffer the longest and hardest during the months and years that
follow. You may recover from the stroke, but it is unlikely your spouse
will ever regain her/his equilibrium - chronic stress, anxiety, and depression
will continue long after you have survived your brush with death.
As the bills for the skilled nursing care and medical equipment begin
to pile up, and the expanded world you were part of begins to shrink,
claustrophobia sets in and you first experience the "dark moment":
the moment you realize that your very survival exacts a heavy toll
on those you love the most; a moment that your own mortality becomes negotiable.
It becomes crystal clear: the longer you live in this condition, the more
your family will suffer psychologically, emotionally and financially.
Now your feelings of helplessness turn to despair and panic -- like
a person who is slowly being pulled into a piece of farm machinery;
the outcome inevitable, but powerless to intervene.
Welcome to the world of long-term care.
Arthur Schopenhauer, perhaps the most influential philosopher of the
nineteenth century, described the three stages in the recognition of any
truth: first, it is ridiculed; next, it is resisted; and finally,
it is considered self-evident.
Our long-term care (LTC) delivery system is on the brink of collapse,
and most Americans are either unaware of or indifferent to this
reality.
"There's a train wreck up ahead waiting to happen, Mr. President,
and I'm afraid it's going to be ugly" I told Jimmy Carter during
a phone conversation we had in 1998 on the subject of aging and long-term
care - a conversation I've also had with more than thirty members of Congress
and a number of leaders in the private sector.
Today, more than 70 million Baby Boomers are passengers on that train
- a train with no engineer or brakeman, traveling hundreds of miles
per hour faster than it was designed to.
As the train continues to pick up speed, three of the nation's largest
nursing home chains have recently sought protection from their creditors
in the courts, citing that Medicaid cutbacks mandated by the 1997
Balanced Budget Act, and the US Health Care Financing Administration's
(HCFA) new Prospective Payment System (PPS) have created "an
untenable and severelyprejudicial financial environment."
Even the insurance industry is beginning to show signs of concern. The
recent announcements that Fortis and the Travelers were selling
their LTC insurance divisions sent shock waves through the financial services
sector, setting the stage for what now appears to be an inevitable
series of consolidations, mergers and acquisitions.
Do I have your attention? Good, because now that I've taken the time
to painstakingly lay the groundwork, it's time to tear down the
entire foundation and tell the truth.
This nation's current long-term care crisis has little to do with long-term
care. Oh, the metaphorical train is real alright, as is the unnecessary
suffering of countless elders who will live out their last days in abject
despair. But "unprecedented population demographics," lack of
private long-term care insurance, or congressional indifference are not
the root cause of, or the solution to, this crisis.
The real crisis we face is one of aging, a human condition for which
we have very little tolerance or empathy.
In America, the natural cycle of birth and death has been replaced with
slick ads from 35-year-old Madison Avenue executives. And as Dr.
Ken Dychtwald continues to share his vision of 'perfect aging' with
his anecdotes of 92-year-old couples who bench press their grandchildren
before breakfast, the cover of Modern Maturity now touts provocative
glossies of Susan Sarandon and Sophia Loren as examples of 21st
Century gerontological miracles.
We are a nation of extraordinary individuals. To paraphrase Dickens,
the very best and worst of what mankind has to offer can be found
in these 50 states. And amidst our comings and goings, our victories
and defeats, and the ongoing, ubiquitous collection of "stuff,"
we grow older.
In a tradition that predates time itself, we age, preparing for the day
when we will completely and irrevocably surrender, allowing our form to
return to Spirit. And yet, despite the certainty of our aging and
death, we battle in ways that would embarrass even Dylan Thomas.
What is the "essence" of the problem? Frail elders are not
hearty producers or consumers. We understand the logic of the marketplace,
but we draw a blank when it comes to primordial imperatives. In short,
we embrace the 80-year-old who is still a successful entrepreneur
- until they become weak or frail.
On Jan. 5, 2000, the Governor of my home state, George Pataki, delivered
his State of the State Address. Seven thousand, two hundred and fifty
two words, and not one mention of the challenges the face our state's
frail elders. This, in spite of a state budget that earmarks more money
for long-term care than any other item except education. Imagine. he managed
to talk about our "prison population," but not a word about
our population of elders.
Recently I spoke at length with Oren Lyons, Faithkeeper, Turtle Clan,
Onondaga Nation, Haudenosaunee, Six Nations, Iroquois Confederacy about
the subject of aging and our elders.
Chief Lyons, now 70, said, "...when an elder speaks they carry an
authority and wisdom that only comes with age and experience - when
the sharp emotions of youth are worn down and rounded. There is
a standard in the Natural World, where the elders always are, in which
they are perceived as leaders. In a buffalo herd, the eldest is
the leader. In the forest, the oldest, largest trees are the most
fruitful and productive. They are the great seed bearers.
If you look only to the Natural World, you will see the value that nature
places on aging.
In many of today's industrial nations, they generate their power and
authority from youth - they build their foundation on the strength of
their young, and this is a great loss; a great disconnect between
that society and their elderly.
The vision of Chief Lyons is not "new age" or even new for
that matter. It is simply a manifestation of the natural world -
a world that many of us have become strangers in.
Martin K. Bayne
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